Breaking stigma after a negative press release…

Things happen that challenge everything we do, make us feel like our effort has been wasted and sometimes even leave us questioning our own intentions in life.

We go through every day with a perfect track record of getting through, a smile on our face and a hand to help others.

But sometimes life throws us a curve ball, it’s horrible but somewhat unavoidable. We are then left with 3 choices…

1: We can stand there and let it hit us straight in the face, knocking us backwards with little sight of what we’ve tried so hard to do.

2: We can dodge it, hide from the fear. No visible bruise from the hit but whilst letting it destroy us inside.

Or

3: We face it head on, we knock it out the way of our path and carry on regardless. Not choosing to throw it back at the perpetrator but instead using it as a way to propel our self forward in the direction we where heading.

this happened to Ben from ELFTs NHS Break the Stigma Campaign when he had a very negative experience with a local paper a few weeks ago. Doing what he does best and bravely sharing his own experiences and what he has been through to help raise awareness on suicide prevention day.

Unknown to him this interview turned out to be his worst experience since opening up about about his battle with my mental health problems and running the Break The Stigma campaign.

“I knew the article was going out in the paper on the Sunday, but I thought I would check to see if the article was online the night before, it was online, but as I started to read the article my heart sank, it was the most awful thing I had read, full of quotes I hadn’t said, things written about me that were absolutely not true, my deeply personal problems all garbled up making no sense to what I had actually been through, then having my mental health problems being described as me self destructing, not the fact that I was very unwell.

I was horrified that this awful piece about me was online, then I realised……this article full of things I hadn’t said with a picture of me was going to be delivered through thousands of peoples doors the next day. I can’t put into words how that made me feel, just that I became very unsettled very quickly, I had a horrendous night, but all my coping strategies kicked in when I needed them most and I knew I needed help, the motto I have always used with this campaign is “It’s OK to talk, it’s OK to need help” I needed that so much, so that is what I did, I went to the Samaritans drop in service as soon as they opened and spent 2 and half hours there, the support and kindness I received was incredible. I then went to my GP the following day and that helped loads too, she reminded me how far I have come these last few years, It then sunk in if this had happened a few years ago I would not have dealt with the situation as I did and asked for help so quickly.”

Ben did the best thing anyone could do in this situation and took choice number 3.

Seeing his post on Facebook after only seeing him in passing just last week broke my heart. How can such an amazing guy be subject of such a harsh act. Nobody has the right to change his past into an article it never was.

But guess what?!! He didn’t react in the way the stigma expected him too. Instead he used his willpower, positive coping strategies and support circle of people around him to get through. He not only showed himself how far he has come but also has shown others just how strong he really is… something only to be admired.

They say the strongest soldiers are sent to fight the hardest battles… and he is proof of this. I am so proud Ben can tell his story, I am proud of his campaign but mostly I am proud of who he is as a person!!!
Break the Stigma

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America here we come!!

With less than 4 hours before we leave for America I can hardly believe we’ve made it this far…. Never in the three years of us planning and cancelling this trip did I ever think we’d ever get this close to flying. Our holiday we dreamed of – Disney Orlando Florida.

From mums many cancer ops/ procedures, Natalie’s spinal surgery, my Grandads heart attack and to top it all off my eating disorder, it has been a tough few years for everyone. We’ve faced a lot together and that’s not been easy, many tears have been shed, hands held and fingers crossed…. we’ve laughed, cried, screamed and been left feeling empty.!

This holiday has been our motive, the light at the end, the goal or maybe even the beginning of better times? 

It’s finally here. 

I haven’t let myself feel the reality that yes THIS IS HAPPENING, I suppose I’ve blocked it out filling my time with anything but planning. I’ve avoided packing until made to and had minimal input in deciding how to spend our days.

I’m desperately trying to remain positive but still fear its going to be ripped from our grip… 

But my family are my anchor in rough waters – and maybe we weren’t supposed to have it easy. Maybe it was this way because we’re some of the rare few who can handle these tough times and still carry on regardless. Maybe rock bottom will be the foundations in which we rebuild our life. 

Maybe this will be the holiday of a lifetime…
AMERICA HERE WE COME!
 

Body Confidence – Why it’s not all about change…

Raise your hand if you’ve ever looked in the mirror and been left feeling utterly deflated. Believe me you’re not alone, I have both hands raised too! Thinking about it I don’t really know anyone who is completely satisfied with their body, it’s either too big, too small, to short. Blotches, pimples, wrinkles and hair in the wrong places.

We are surrounded by a society where body shaming yourself is more socially acceptable than saying “wow I look amazing!” without being seen as boastful or arrogant. Walk into any news agents and you will see a shelf filled with magazines continuing to perpetuate highly unrealistic expectations of both men and women, despite years of controversy.

From the fashion industry to the workplace, we are constantly facing backwards representations of ‘ideals’ which continue to influence our daily life style. If I think about my average morning I probably spend 75% of my time focused on covering up my imperfections with makeup, thin hair with extensions and recycling my outfit millions of times before I go out still feeling dissatisfied.

For someone who is recovering from Anorexia body image is something I battle with frequently. Having had to gain weight in a 6 month hospitalization last year just to restore my physical health managing this drastic change still affects me daily. I find looking in full length mirrors incredibly difficult and knowing it can ruin my day or even set back my progress by weeks – I try to avoid them at all costs.

This avoidance isn’t healthy the same way compulsively body checking isn’t either and it’s questionable why I’d give a sheet of glass such power over me… Recently in therapy we covered the topic of perception being the mental representation one creates. Naturally, I was sceptical – believing it was a hoax just to make me feel better.

But then my therapist said this to me…..

“Look at the wall, it’s just a wall, right?….Now notice that tiny grey scuff and quickly turn away”

I did just that, wondering what an earth he was on about.

“OK now turn back and try to look at the wall as a whole without noticing the mark”  

I couldn’t.

See, this is what we do to our bodies, we scan over them viewing each perceived flaw until this is all that is left. Scrutinising the size of our forehead, nose, thighs or stomach until we are internally labelling ourselves “one big mess’’.

But surely this could be easily changed with surgery or a simple diet?…

WRONG in fact this fuels the obsession itself.

In my experience I have spent years trying to change certain aspects of my shape and body. I devoted so much time, becoming so miserable, yet never once despite all the weight loss did I ever look in the mirror and see anything other than what I wanted to change. It’s a toxic cycle that no amount of surgery, dieting or covering up will ever permanently fix. It’s like trying to make a Bull Dog look like a whippet – inhumane and certainly impossible.

What we need to do instead is to learn acceptance, find out the route of what is making us reflect badly. Is that image subject to distortions from a lack of self-confidence, overwhelming emotions, attitudes influenced in childhood or maybe just that overdue assignment. We should tackle this first because how you feel on the inside is what truly reflects in your eyes.

Body confidence for me has never come from trying to achieve the “perfect”. It’s more of a combination of self-love, compassion and embracing the reasons you were given it… Now that I understand living is more that just existing in physical form, I am dedicating my time to believing it and slowly gaining back what I lost to my illness!

…Apologise to your body and let the healing begin….

Letter to Inpatient – 1 year on

Dear all you Huntercombers,
It’s been awhile since I wrote a letter and thought I’d give you all a little update of what’s going on in ‘The Life of Kirsty Spicer’.

So it’s nearly 1 WHOLE YEAR since arriving at the delightful Cotswold Spa Hospital and as lovely as you all are I am happy to say I am not planning to be staying the night there anytime soon. Looking back (although obviously moving forward ;D ) it still makes me giggle some of the funny antics we all got up to…

Since Discharge things have been going well. I have learnt that set backs just make me stronger and a bad morning does not mean a bad day/ week/ life. I have discovered what helps me in recovery and have been transitioned from CAMHS to Adult Eating Disorder services and CMHT.

So what have I been up to?
Well I have been back to sixth form full-time studying AS Maths, Biology, Chemistry and Extended Project Qualification (as extra). It’s going well and unlike my attendance last year I am currently at 100%.

Also, since I have always found lunch times difficult at school, I now act as a mentor for those who find it hard on the playground. They all struggle with different things like Aspergers, ADHD, Anxiety etc so it can be really rewarding when you see you have helped make their school experience easier.

With my aim still to working in the medical field I have had a week’s work experience in the Cardiology department at my local hospital where I witnessed open heart surgery, an operation where someone had to have an electric impulse put through their body to get the heart back into rhythm and was involved in clinics and ward rounds. Also whilst visiting I went back to the children’s ward I was on before going to Cotswold Spa and spoke to some of the nurses who treated me – they seemed to remember me very well (I wonder why it’s not like I caused trouble or anything?)

I have carried on writing my blog “Embracing Authenticity” which has really benefitted my recovery. I find that by having somewhere that I need to remain positive gives me a reason to keep going. It follows my journey and raises much-needed awareness for mental health. It is now featured on the NHS East London foundation, Anna Freud Centre and many other charities websites/ pages. (Gone are the days I aimed for it reaching only a few people. I’m now up to 17,000+ views worldwide and counting)

I am on the ELFT NHS service user panel helping to employ staff for my local CAMHS. It’s really enjoyable and I have helped employ a school worker, psychologist etc… I have to admit I am very picky and they have to live up to the standards of all the amazing staff at Cotswold Spa!!

My social life is buzzing. I have gone from staying at home too anxious to see even my closest friends to now having so many different friendship circles and always being somewhere. I celebrated my 18th birthday last year with my own party ( that’s some contrast), I have brought my own little red car (named: Roxy Red Spice) after passing my test first time and am driving 200 miles to visit Danni and her foster family in Glastonbury next week! I am SO SO EXCITED and we will be sure to cause mischief!

I went on holiday to paris a few weeks ago, which was FABULOUS. I am looking forward to my 3 week trip to America this summer which unlike last year will not be cancelled due to Anorexia trying to ruin my life.

Oh and did I mention I’m basically famous. I was one of the 5 people in the country to have an animated film made around my mental health. I have been up to the London Recording studio’s (surreal time) and it is being produced by a film company ‘mosaic films’. Once complete the film will be screened on the BBC website and on YouTube where they will be used in schools to support PSHE work with young people around mental health. The films will also be made available to charities/ NGOs to embed within their own websites, supporting outreach/awareness raising/and anti-discrimination/ stigma work. As well as that the film may be used in teacher training capacity.

Thank you so much for helping me achieve all these things! And as cheesy as it sounds you have helped turn my life around. I hope you’re all proud of how far I have come and I am now out to prove to you, myself and others the thing you all told me during meal support “life will get better”

I’ll give you all a shout out when I receive my BAFTA!;)

Kirsty x

Little Note to patients;

You have made it this far, and that is something you should be proud of. It is important that you remember that recovering from anorexia takes a lot of dedicated hard work. Recovery is possible and it’s a life worth living.

The journey will be full of both good days and bad days. It’s not necessarily a straight route but it is still moving forward. Some days you might feel hopeless and trapped in the conflicting thoughts. My top advice to cope with this; NEVER give up! Days like that are when you need to fight even harder. Show Ana who’s boss because it cannot, will not define you.

You have a life worth saving. So believe in yourself, trust the staff and believe that you can recover. There is a beautiful life waiting for you beyond Cotswold Spa and I cannot wait for you to find it!!

Now go kick ANA’s ASS!

“They can’t be depressed they smile, laugh and seem to have life all planned out”

“They can’t be depressed they smile, laugh and seem to have life all planned out” – Or so it may seem.
Depression, it’s the source of much contradiction and a topic I have shyly avoided revealing. So here I go…

I HAVE DEPRESSION

“But how can you be depressed?” they’d ask. I imagine the words stabbing me in the chest. I suppose the question is valid – I seem to have confidence, I smile and am surrounded by so many people who love and care about me.

What more could anyone want?

It’s like you can’t possibly be sad, unless your life is basically falling apart at your fingertips. But strangely enough that’s not how depression works.

See, I felt ashamed of the way I felt with even just the word ‘depression’ giving me an uncomfortable feeling. It was like I had a life out there ready to enjoy but it was no longer in my reach.

A chemical imbalance that alters your emotions leaving you drowning and believing you’re a burden to everyone around. It feels like you’re the sink of all happiness, drowning all hope. The things that could normally be brushed off now tear chunks out of your sanity..

With depression I always imagined someone miserable who would lay in bed and cry all day. But thats NOT ALWAYS the case. For me it’s hit differently every time, a feeling so numb that even tears where to much to feel, a smile painted perfect, till alone washed away…

I’ve learnt from myself Depression has so many different faces and forms and what’s on the surface is not always so. It could affect one of your closest friends or the man round the local shop.

Depression DOES NOT discriminate.

Yes at times all you can do at the end of a long day is lie down and shut your eyes. But ground yourself – notice your heart, it’s still beating, still fighting. You made it to here and that’s what matters right now. You have a 100% track record of surviving even the worst day’s which shows the strength to overcome.

I’m Struggling, I’m Human.

It’s only human to have bad times. 

This last week for me has been exactly that. No, I’m not going to write a post pretending everything’s just ‘fine’ because that would be giving a glossed picture of recovery.
See, the truth is the aim of being positive is still just a relative concept. Even those with years of practise can not always determine unexpected fluctuations… 

Shaky moments are perfectly normal! 

People who seem to have it altogether still have rough patches. With good intentions effected by fate it leaves us no choice but to get on the train at the next station.

For me reminding myself of something I read whilst inpatient really helps me to put things into perspective and give me the courage to carry on. With the passage striking me on a personal level I really wanted to share it with you all….

“Picture yourself when you were five years old. In fact dig out a photo of little you at that time and tape it to your mirror. How would you treat her, love her, feed her? How would you nurture her if you where the mother of little you? I bet you would protect her fiercly whilst giving her space to spread her itty bitty wings. She’d get naps, healthy food, imagination time, and adventures into the wild. If playground bullies hurt her feelings, you’d hug her tears away and give her perspective. When tantrums and meltdownss turned her into a poltergeist you’d demmand a loving time out in the naughty chair. From this day forward I want you to extend that same compassion to your adult self.”

I do not intend on sharing how it related to me but would l love to know if it impacted you in anyway… please let me know! Now, have the best week possible and keep moving forward.